The annual EGS/GalNet meeting is a great opportunity to come together as an international community, share knowledge and experiences, and strengthen our collaboration. By bringing together professionals and patient perspectives, we can continue our joint efforts to improve the treatment, care, and outcomes of people living with Galactosemia.
We are looking forward to an inspiring meeting on the 21th of November in Amsterdam.
The Dutch Galactosemia society (GVN) is hosting the meeting.
The meeting will take place at the Park Plaza Airport Schiphol Hotel and online via ZOOM.
Registration to the live meeting is open for GallNet and EGS members.
Please connect with the EGS secretary for a link to subscribe.
(Email secretary at the ‘About the EGS’ page)
Please find the program and meeting details below.
Friday Program , November 20th
| 19:30 | Drinks and Dinner (buffet) at the Ramada Amsterdam Airport Schiphol hotel. |
Saturday Program, November 21th, (10:00 –12:30, Amsterdam time)
Presentations
| Clinical Readiness project | Estela Rubio-Gozalbo, University Medical Centre Maastricht, The Netherlands |
| Brain Morphometry, Cognitive and Fine Motor Functions in Young Patients with Classic Galactosemia | Anja Maria Vossenkaul, Matthias Gautschi, Inselspital, University Hospital Bern, Switzerland |
| Movement disorders in Classic Galactosemia | Tom de Koning, University Medical Center Groningen, The Netherlands |
| Myo-inositol in Classic Galactosemia | William Brucker Didem Demirbas and Allisia Gilmartin, Boston Children’s Hospital/Harvard Medical School, USA |
| Lessons learned from cell models for Galactosemia type 1/2/3 | Sacha Ferdinandusse, Amsterdam University Medical Center, The Netherlands |
| Patient input for development of Target Product Profiles for Classic Galactosemia – Follow up | Clementine Bry, EGS, France |
Working sessions
| Sexual health in individuals with CG | Adriana Pané Vila, Hospital Clinic de Barcelona, Spain Cennikon Pakpahan, Airlanga University, Surabay, Indonesia |
| Guidelines amendment | Annet Bosch, Amsterdam University Medical Center, The Netherlands |
| GalNet break out discussion session | GalNet members |
| EGS break out discussion session | EGS members |
| 19:30 | Leave for dinner in Haarlem, restaurant De Dakkas |
Sunday Program, November 22th
| 08:30 | Breakfast and checkout of the hotel |
| 09:30 | Leave for visit to centre of Haarlem (13:00h end of Program) |