“Treatment Landscape and Patient Input” is the theme of this year’s joint EGS/GalNet meeting.
We are looking forward to an inspiring meeting on the 22th of November in Amsterdam.
Together, we will continue our shared mission to improve the treatment and outcomes of individuals with Galactosemia.
The Dutch Galactosemia society (GVN) is hosting the meeting.
The meeting will take place at the Ramada Amsterdam Airport Schiphol hotel and online via ZOOM.
Registration to the live meeting is open for GallNet and EGS members.
Please connect with the EGS secretary for a link to subscribe.
(Email secretary at the ‘About the EGS’ page)
Please find the program and meeting details below.
Friday Program , November 21
| 19:30 | Drinks and Dinner (buffet) at the Ramada Amsterdam Airport Schiphol hotel. |
Saturday Program, November 22
Morning Program, (10:00 –12:30, Amsterdam time)
| 10:00 – 10:30 | Welcome and opening | Jeroen van Kempen, Chair EGS, The Netherlands
Estela Rubio-Gozalbo, Chair GalNet, University Medical Centre Maastricht, The Netherlands Gerard Berry, co-chair GalNet, Boston Children’s Hospital/Harvard Medical School, USA |
| Session: Reshaping the treatment landscape? | ||
| 10:30 – 10:45 | Treatment beyond diet: introduction | Estela Rubio-Gozalbo, University Medical Centre Maastricht, The Netherlands |
| 10:45 – 11:30 | Genetic Therapy, what’s possible for Classical Galactosemia | Pim Pijnappel, Erasmus University Medical Centre, Rotterdam, The Netherlands |
| 11:30 – 11:45 | Coffee break | |
| 11:45 – 12:00 | Myo-inositol function: a new mechanism? | Naomi Vos, University Medical Centre Maastricht, The Netherlands |
| 12:00 – 12:45 | Myo-inositol in Classical Galactosemia | William Brucker and Allisia Gilmartin, Boston Children’s Hospital/Harvard Medical School, USA |
| 12:45 – 13:45 | Photo and lunch |
Early afternoon program, (13:45 –16:00 Amsterdam time)
| Patient input, interactive GalNet/EGS sessions | ||
| 13:45 – 14:30 | MetabERN Care Pathway | Annet Bosch, Amsterdam UMC, The Netherlands |
| 14:15 – 14:45 | Incorporating patient input for development of Target Product Profiles for Classical Galactosemia: Introduction and discussion |
Eileen Treacy, Trinity College Dublin, Ireland
Jeroen van Kempen, EGS, The Netherlands Clementine Bry, EGS, France |
| 15:45 – 16:00 | Coffee break | |
Late afternoon program (16:00 –18:00 Amsterdam time)
| GalNet/EGS Work sessions | ||
| 16:00 – 17:00 | GalNet Work session: a.o. Registry |
GalNet members |
| 16:00 – 17:00 | EGS Work session: a.o. Patient input |
EGS members |
| 17:00 – 17:30 | Q and A session | |
| 17:30 – 17:45 | Closing remarks and setting the date for next year’s meeting | Jeroen van Kempen, The Netherlands
Estela Rubio-Gozalbo, Maastricht, The Netherlands Gerard Berry, Boston, USA |
| 19:30 | Leave for dinner in Haarlem, restaurant De Dakkas |
Sunday Program, November 23
| 08:30 | Breakfast and checkout of the hotel |
| 09:30 | Leave for visit to centre of Haarlem (13:00h end of Program) |